|
DOMAIN
|
#
OF TOOLS IN DOMAIN
|
TOOLS
SELECTED FOR REVIEW
|
CONCEPTUAL
MODEL, RELIABILITY AND VALIDITY REPORTED?
|
RESPONSIVENESS,
INTERPRET-ABILITY & BURDEN REPORTED?
|
MODE
OF ADMINISTRATION
|
#
OF ITEMS IN TOOL
|
LANGUAGES
OTHER THAN ENGLISH
|
|
Advance
Care Planning
|
6
|
Toolkit
of Instruments to Measure End of Life Care Bereaved Family Member
Interview |
Y
|
Y (responsiveness
data pending)
|
Interviewer-administered
|
7-items
(for ACP) |
None
|
|
Caregiver
Well-being
|
53
|
Caregiver
Strain Index |
Y
|
N
|
Interviewer-administered
|
13-items
|
None
|
| Caregiver
Reaction Assessment |
Y |
Y |
Interviewer-administered |
24-items |
Dutch |
|
Continuity
of Care
|
4
|
Picker
Commonwealth Single Item |
Y
(for Conceptual Model)
|
Y
|
Self-administered
|
Single-item
|
Spanish
|
| Smith-Falvo
Patient-Doctor Interaction Scale |
Y
|
Y
|
Self-administered
|
17-items
|
None
|
| McCusker
Scale |
Y
|
Y
|
Interviewer-administered
|
4-items
|
None
|
| Chao Patient Perception |
Y
|
N
|
Mailed-survey/Chart-
audit
|
23-items
|
None
|
|
Emotional
Symptoms
|
41
|
Profile
of Mood States |
Y
|
Y
|
Interview-administered
|
11-items
|
None
|
| Memorial
Symptom Assessment Scale |
Y
|
Y
|
Self-administered
|
23-items
|
None
|
| CES-D |
Y
|
Y
|
Self-administered
or Interviewer-administered
|
20-items
|
Chinese
|
| Rand
Mental Health Inventory (MHI-5) |
Y
|
Y
|
Self-administered
|
5-items
|
Several
languages
|
|
Functional
Status
|
15
|
Index
of Independence in ADLs |
Y
|
Y
|
Medical
staff rated
|
6-items
|
None
|
| Barthel
Index |
Y
|
Y
|
Self-administered,
Medical staff-administered
|
10-items
and 15-items
|
Japanese
|
| Physical
Self-Maintenance Scale |
Y
|
N
|
Self-administered
or Interviewer-administered
|
6-items
|
None
|
| Rapid
Disability Rating Scale |
Y
|
N
|
Medical
staff rated
|
18-items
|
French
|
| Stanford
Health Assessment Questionnaire |
Y
|
Y
|
Self-administered
or Interviewer/Telephone-administered
|
20-items
|
Swedish,
Spanish, Dutch and French
|
| FIM™
Instrument |
Y
|
Y
|
Interview-administered
|
18-items
|
French,
German, Japanese and Swedish
|
|
Grief
and Bereavement
|
24
|
Grief
Resolution Index |
Y
|
Y
|
Interviewer-administered
or Self-administered
|
7-items
|
None
|
| Anticipatory
Grief Scale |
Y
|
N
|
Self-administered
or Interviewer-administered
|
27-items
|
None
|
|
Physical
Symptoms
|
64
|
McGill
Pain Questionnaire |
Y
|
Y
|
Self-administered
or Interviewer-administered |
11-items
|
Spanish,
Danish, Arabic, Chinese, French, German, Italian, Japanese, Norwegian,
Polish, and Slovak |
| Wisconsin
Brief Pain Questionnaire |
Y
|
Y
|
Self-administered
|
17-items
|
None
|
| Memorial
Pain Assessment Card |
Y
|
Y
|
Self-administered
|
8
descriptors and 3 visual analogue scales
|
None
|
| Edmonton
Symptom Assessment System |
Y
(for conceptual model)
|
Y
|
Self-administered
or Proxy-administered
|
9
100mm visual analogue scales
|
None
|
| Memorial
Symptom Assessment Scale |
Y
|
Y
|
Self-administered
or Interviewer administered
|
32-items
|
None
|
| Quality
of Life |
41
|
McGill QOL Questionnaire |
Y
|
ongoing
|
Self-administered
|
17-items
|
French
|
| Missoula-VITAS
QOL Index |
Y
|
N
|
Self-administered
|
27-items
|
None
|
| EORTC (QLQ C-30) |
Y
|
Y
|
Self-administered
|
30-items
|
38
languages
|
| FACT/FACIT (Fact-G) |
Y
|
Y
|
Self-administered
|
27-items
|
25-languages
|
|
Satisfaction
|
20
|
Medical
Outcome Study Satisfaction Survey |
Y
|
Y
|
Self-administered
|
21-items
|
Several
languages
|
| Toolkit of Instruments
to Measure End of Life Care Bereaved Family Member Interview |
Y
|
Y
|
Interviewer-administered
|
8-items
|
None
|
| Picker-Commonwealth
Survey |
Y
|
Y
|
Self-administered
|
61-items
|
Spanish
|
| FAMCARE |
Y
|
Y
|
Interviewer-administered
|
20-items
|
None
|
|
Spirituality
|
25
|
Meaning
in Life Scale |
Y
|
N
|
Interview-administered
|
15-items
|
French
|
| Spiritual
Well-Being Scale |
Y
|
Y
|
Self-administered
|
20-items
|
None
|
| Spiritual
Perspective Scale |
Y
|
N
|
Self-administered
|
10-items
|
None
|
| Death
Transcendence Scale |
Y
|
N
|
Self-administered
|
25-items
|
None
|
| Death
Attitude Profile |
Y
(conceptual model and validity)
|
N
|
Self-administered
|
21-items
|
None
|
| Herth Hope
Index |
Y
|
Y
|
Interviewer-Administered
|
12-item
|
None
|
