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Facts On Dying:
Policy relevant data on care at the end of life
Facts on Dying logo - picture of US map with F O D in the center


What's New

State Profiles

Maps & Rankings

Change Over Time

Brown Atlas of Dying

Summary for Policy Makers

Information for Consumers

Slideshow of US Findings

Press Releases & Publications

About This Research



As of May, 2004

What's new?

Over the last several weeks, we have been working to update the data on the Facts on Dying website to ensure that it is as accurate and user-friendly as possible. In doing so, we have made a few changes, including the addition of 2001 data.

Who are the decedents?
The decedents are people 15 years of age or older who died of chronic illness. A chronic illness was defined as any non-traumatic or external cause of death. Death certificates that listed death as a result of any of the following were excluded: pregnancy and childbirth related causes, motor vehicle accidents, all other accidents, suicide, assault homicide, and all other external causes. Foreign residents and those with an unknown site of death were also excluded. Death certificates that listed a site of death as other than a nursing home, hospital, or home were included in the denominator for all calculations.

Is the data standardized?
Both adjusted and unadjusted data for 1989, 1997, and 2001 are shown on this website. Adjusted data are shown whenever comparisons across time or between states are displayed, while unadjusted data are shown whenever information on a single state during one year is given. All adjusted data were standardized for age and gender against the 1990 U.S. census population.

If you have any further comments or questions, please feel free to contact us.

    As of June, 2002

    The Facts on Dying website has been redesigned to coincide with the release of findings, published in the June 26, 2002 edition of JAMA, documenting the nearly ten fold variation in the use of feeding tubes among nursing home residents with severe dementia. Other aspects of this redesign include:

      1. Information on 12 indicators of end-of-life care is available for each state

      2. Presentation of the data in both graphical and table

      3. Information for policy makers

      4. Information for consumers

      5. Change in the site of death over time

      6. A slideshow presentation on Feeding Tube use in the US

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    This site has been visited times since it went live on 8/31/00.  Please contact the webmaster with any feedback you may have.  Thanks for visiting!

    Funding provided by
    Robert Wood Johnson Foundation

    This web site is published by the Center for Gerontology and Health Care Research at the Brown Medical School. For further information, contact the webmaster via e-mail at factsondying@brown.edu or Dr. Joan Teno at Joan_Teno@brown.edu.