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Facts On Dying:
Policy relevant data on care at the end of life
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Understanding the Study of Care
at the Last Place of Care


SHARED DECISION MAKING

"I would never recommend [that doctor] to anyone. I never even MET him. … He was a doc who had a lot of patients at the assisted living facility. He was recommended, so as long as they recommended him, I felt like it was in everyone's best interests. …I did [try to reach him], and I mostly spoke to his nurse practitioner. …I thought she was rather matter of fact. ...So I really don't feel like it was a patient-doctor conversation in that it was…uncaring. It felt very uncaring. I felt like I was really interrupting her in her busy day because the doc was not available. "

-daughter of a woman in her 70s with cancer

 

"And I said, 'I'm watching and I know [my father's] going down. You are not to give him any false hope and PRETEND like the treatment can help, 'cause you really don't know that, do you?' And [the doctor] said, 'No.' I said, 'You can't promise him anything.' I said, 'In fact, the treatment could make him worse, couldn't it?' He said, 'Yes.' I said, 'Because if he's throwing up and he's weak, and you had to give him medicine to counteract that.' I said, 'I'M WATCHING and I see, NOT YOU!' So I said, 'Unless you can definitely say where it spread and a whole bunch of information and you feel it can be slowed down or stopped and that his quality of life is not going to be impaired,' 'cause treatment could actually put him in the bed. And he said, 'Well, I can't promise.' I said, 'I know you can't.' I said, 'So when you talk to him, you're going to have to give him false hope,' 'cause doctor's do that. …And I know I was right, 'cause like I said, I had watched him."

-daughter of a man in his 70s with cancer

 




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This web site is published by the Center for Gerontology and Health Care Research at the Brown Medical School. For further information, contact the webmaster via e-mail at factsondying@brown.edu or Dr. Joan Teno at Joan_Teno@brown.edu.