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Facts On Dying:
Policy relevant data on care at the end of life
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Background Information to Aid in
Understanding the Study of Care
at the Last Place of Care


TREATED DYING PERSON with RESPECT

"As long as somebody was there with [my father], it was fine. And the minute we left, then he was about totally ignored. I went [out] for lunch one day…and came back and they had him in the hall, strapped in a chair, completely slumped over. And, evidently, he had, he had tried to get out of bed or something and they didn't, they were busy and they didn't feel like they had time to watch him. But he was not properly clothed, and my opinion was at that point they saw him as nothing but an old man. And we had that same experience in the emergency room. And, which was, you know, that was kind of upsetting to see… When the people from the home were there, from the assisted living care facility, when they were there, everything was fine. But the minute somebody was not there in the room with him, then the care very definitely was less acceptable."

-daughter of a man in his 80s with cancer


"I felt like they cared for her like she was just a thing. …Like two of [the nursing assistants] would come in, and they would talk to themselves. I mean they were talking about their day and not talking to her. And she wasn't real responsive, but she'd talk to me all the time and she'd talk to my sister all the time. And she would talk if she was talked to in a, you know, in a caring way. But it was like they would talk about their dates or their families or- like she was a non-entity. I mean it was frustrating."

-niece of a woman in her 80s with heart disease

 



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This web site is published by the Center for Gerontology and Health Care Research at the Brown Medical School. For further information, contact the webmaster via e-mail at factsondying@brown.edu or Dr. Joan Teno at Joan_Teno@brown.edu.